EA Forums

tugon (imported) wrote: Mon Jul 14, 2014 9:42 am I am glad you are receiving help with your pain. I am sorry I have not read your posts before but I feel like I am coming in late to the story. Are you having chronic testicular pain? I hope you find relief.

Wifflebender (imported) wrote: Mon Jul 14, 2014 9:39 am I have kind of reached the end of my rope with all the pain. I guess my back up plan is to see a surgeon such as dr arnkoff or dr bowers to have both testicles removed if my new doc doesn't do anything different.

unencumbered (imported) wrote: Mon Jul 14, 2014 10:42 am Find a sympathetic urologist if the one you currently are using doesn't help you. They are out there. You just need to look a bit. A female surgeon seems to be the best bet.

raymar2020 (imported) wrote: Mon Jul 14, 2014 8:05 pm As a guy who endured testicular pain for way way too many years, I can sympathize. Trust me once started , it tends to only get worse, never better. I reached the point where sometimes in a public place the pain would kick in with a vengence and actually bring me to my knees. For me, a dull ache was constant, with flares that came unannounced, and lasted for different lengths of time.

If you can deal with it, likely the best choice is to remove them. Living without testicles is different than being intact, but with some diligence regarding HRT , the changes are subtle. My personal feeling is that implants are a mistake, having known more than a few who had health issues related to them.

If you and your wife are thru with the whole making babies thing, and she is accepting and supportive about you having them removed, you have overcome the biggest battles. With the exception of full time nudists, how often after all will anyone see you undressed to discover you don't have them?

Good Luck with the nerve blocks, I had mixed results , but ultimately surgery cured the pain forever.

Raymar

jako9999 (imported) wrote: Tue Jul 15, 2014 7:01 am I hope it all goes your way removal is the best option if there not there then the pain will be gone but after saying that you do get phantom pains every now and then. Good luck

Philcheck (imported) wrote: Tue Jul 15, 2014 1:02 pm I'm also in a similar situation as you Wifflebender. I have had chronic testicular pain for the last four years after having numerous abdominal surgeries, where the inguinal nerve and other associated branches were damaged, or developed scar tissue entrapment around them. I was treated with medications, progressing to nerve blocks as the condition worsened. I was told an orchi would not help since my problem was occurring above them. The nerve blocks worked great for me but eventually worked less and less time for me. I eventually had a nerve stimulator implanted to block the pain signals. Sounds like your uro is going to use the blocks as a diagnostic tool to confirm the pain is coming from your testicles. The pain doc may also try some non narcotic medications that work on blocking the nerve pain such as Lyrica, and Cymbalta. My pain has recently worsened again and is not controlled as well with the implant. After a recent visit with my pain doc the orchi discussion is back on the table. Good luck with your pain doc.

Tante Wippen (imported) wrote: Wed Jul 16, 2014 2:23 am Although Lyrica (also known as Pregabalin) can be an excellent drug to treat neuropathic pain, it can also be lethal! As a result of this I would advise anyone who plans to take Lyrica, to take the first few doses with someone around who can at least call for an ambulance, if not give CPR.

Riverwind (imported) wrote: Wed Jul 16, 2014 3:55 pm I have been taking Gabapentin for the last couple years for nerve pain, its one generation back the only side effect I seem to have is it makes me tired so I only take it at bedtime.

Wifflebender (imported) wrote: Tue Aug 12, 2014 9:51 am Pain doc is trying a topical cream that has a buch of stuff that I cannot pronounce that he has to order from the east coast. Does anyone else have any experience with topical creams for testicle pain? He said if those don't work then he will try gabaphentin

kristoff wrote: Tue Aug 12, 2014 10:19 am I've not used topicals, so I can't speak to it. Gabapentin, on the other hand, is "supposed" to be good for neural pain (it rarely is), and is generally worthless. There are a few others (e.g., Lyrica) that he might try to pawn off on you - generally worthless. Don't give trials long time periods. If stuff doesn't work, press the issue.

Wellesley (imported) wrote: Wed Aug 13, 2014 9:48 am Topical cream is often rough on the scrotal tissue.

It does give a different sensation I will admit.

Lyrica just made me high. It was not a great choice.

Never did get nerve blocks. I read that they are diagnostic tools mostly. I was offered lower spinal nerve blocks but chickened out and went with the orchiectomy. (I heard about the spine blocks leaving the entire groin area numb)