Swim1650 wrote: Tue Nov 18, 2025 4:16 am
Yeah, it seems like games will definitely be played with the insurance to get approval. I don't consider myself non-binary, I'm a masculine male who identifies as a man. If I want my genitals removed is that gender dysphoria or just body dysmorphia? If the latter, I could easily see the insurance denying surgery because they think my concern is mostly cosmetic. I don't want to be dishonest with providers, but if the same time, if they are extremely rigid in how they make insurance claims, I worry I might say something that will affect a potential approval.Worst case I'm approved medically but have to pay out of pocket. I'd prefer not to pay 10's of thousands out of pocket for something insurance should presumably cover, but honestly if I make that far and still want the surgery, I''ll probably do it despite the cost.
Remember the docs pretty much only get paid if they can get the insurance to pay, so they are pretty much the experts on dealing with them and know what boxes to check and all that. I never had to talk w/ my insurance (Medicare / Medicaid) at all - the doctors staff took care of all that. If you do end up needing to pay out of pocket, a few here have said it is less expensive, even with the travel expenses, to get their surgery from Dr. A down in Mexico than it would have been in a US hospital.
Swim1650 wrote: Tue Nov 18, 2025 4:16 am
I can imagine between your age, your lower paralysis, and your use of a wheelchair the doctors being concerned about your bones. As I'm sure you know, the lack of muscle movement in your legs and low stress a from not having the same mobility as a physisically able-bodied person the signals that stimulate bone resorbition leads to loss of bone loss. "You snooze you lose" as they say... much like a hormonally deprived penis will atrophy from to the lack of erections. Being hypogonadal is a pretty unhealthy state to be in. It's not just bone health, there's significant cardiovascular risks, high rates of metabolic disorders (T2 diabetes, dyslipidemia), and so on. Plus, insulin resistance if not treated or mismanaged causes countless other problems. That said, I recognize very much the contradiction of removing your testicles only to replace your endogenous T with exogenous T... I think about a lot that myself pertaining to my own ambitions.
Exactly, it is primarily the paralysis that is the big bone health risk factor. You also quite correctly point out the risks of 'going natural' although it is also worth noting that there are multiple studies (including the Indiana study from relatively recent times) showing that eunuchs lived longer than intact males without any supplementation.... My recollection from surveys done on EAv2 was that it was about even w/ 1/3 claiming to be 'natural', 1/3 using some level of T, and 1/3 using E... (Perhaps JesusA can pop in with the study references on both of these topics?) At any rate, in terms of the health benefits T and E are almost interchangeable in what they do for you. (remember that your body metabolizes T into estrogen and that estrogen is what drives a lot of things like bone growth)
Swim1650 wrote: Tue Nov 18, 2025 4:16 am I suppose the effects of your SCI and hormonal modification are both effectively having the same effect, inhibiting erections. So I think it would be a little hard to pin down what one of these would do without the other. In the case of estrogen, I believe that does vasoconstrict the penile arteries, or at least inhibit vasodilation that leads to erections. So that could have an effect some additional effects?
The SCI didn't stop me from getting erections, but it did leave me unable to ejaculate, which was IMHO worse - I'd get to the 'edge' and then NOTHING, and if I tried to keep going it became painful just like it would have if I had tried to continue after climaxing w/o that needed refractory period rest break... I found that so frustrating that I basically quit trying, and that is when the erections mostly stopped....
From what I've heard E doesn't really stop erections - and after all women get clitoral erections which are using the same mechanism on the same basic structure. I think that the erections are more of a mental thing, they don't happen if not interested.
Swim1650 wrote: Tue Nov 18, 2025 4:16 amI'm curious how you feel different on estradiol vs having your natural T levels- mentally, psychologically. Did your behavior change at all? If you don't mind me asking, I assume you've experienced some degree of physical feminization? What was that like for you personally and socially?
I don't know if I lack the 'proper sensitivity' but I can't say I noticed a lot of difference in how I felt from when I was intact, w/ low T and supplementing, back to low T, no T thanks to Lupron, to being on E... Less frustrated now because I don't have the same unfulfillable desire to get my rocks off, and perhaps a bit more mellow generally. I know I'm significantly less aggressive when driving. I have had some feminizing but it mostly isn't terribly obvious. The biggest change was growing bigger boobs, to the point where I'm not sure I'd feel comfortable in a bathing suit, but not where I feel that I'm outside the 'normal male range' if I have even a T-shirt on... There may have been some fat shifting, but my clothes still fit, and the ladies underwear doesn't show... My beard is shorter but still there, etc... I still present as 'normal male in wheelchair' and nobody seems to question it...
Swim1650 wrote: Tue Nov 18, 2025 4:16 amHow long did your pain / discomfort last? Do you or did you experience phantom pain? That's one concern I haven't looked into very deeply. As much as I believe I would be more content without my genitals, if I get phantom pains that must feel absolutely terrible and potentially debilitating if frequent.
I had a lot of discomfort for the first several days but was basically back to 'light duty' action after about 4 days. It was probably about a month before I felt 'healed'. The worst aspect was that I got a Foley cath before surgery (I was worried about potentially leaking) and per Dr's orders pulled it after 48 hours. However I was still so swollen that I couldn't get to my urethra to cath normally, so I had to go to the ER, where they put in another Foley which I used for another 10 days or so until the swelling was down enough I could cath w/o problems.
Swim1650 wrote: Tue Nov 18, 2025 4:16 amI can see having a penis makes catheters easier- I'll add that on my pro/con's list

. If you didn't have to catheterize would you have considered it? My penis Is very much of the grower variety- erect I have a little advtange over the average length, granted I'm by no means "well endowed" in the way some guys are. My baseline size however is significantly below average. It doesn't help I have a high and tight scrotum that really highlights how little I am. I used to be very self conscious about this in high school.. I wonder if there's some subconscious connection with subsequent nullo interest... but I can't reconcile how having no penis would be better than a small penis (that can grow). Most teenagers have an insecurities and I haven't worried about this a very long time. A girl I dated in college told me often smaller cocks are more attractive - maybe she was just trying to boost my ego. Considering my discomfort with what I have between my legs now, I'm probably fortunate it's not larger.
I'm not sure what I would have done if I didn't need to cath. I definitely would have considered it more, but I don't feel like I was as drawn to the idea of getting rid of my penis the way I was to getting rid of my balls... All my fantasies seemed to revolve around orchiectomy and possibly scrotectomy, and the penis didn't really come into the question either way... I also can't say that I was overly insecure about my genitals as a teen, I got the 'pink monkey' treatment in lots of other ways, so I think it was sort of a 'least of my worries' thing...
WheelyFixed
Paraplegic - T-5, ASIA-B. 2010 Injury left non-functional & frustrated. 4/24/22, stop T. 5/4 start 3.75mg Lupron. 6/29 - T ~0. 7/7 - start E. 9/2 stop Lupron. 3/30/23 - GOT LETTERS! surgery (O&S) 9/28/23. Doing 0.75mg/day E patch as HRT